Wednesday, June 18, 2008

Diagnosis - June 7, 2008

Okay, so this was supposed to be a good day. Morgan and I had bought a new bed frame and night stand for our bedroom back in April and it was finally getting delivered today. Morgan was just getting ready to leave for work when the men from Value City showed up with our bed and night stand. It looks awesome and feels even better to lay in. I was so excited to go to sleep that night in our new bed!! Later on in the morning I did some small chores and talked to my mom a couple times. Then at 10:35 a.m. I got a call from my surgeon. The thought of "Oh crap this can't be good if a doctor is calling me at home on a Saturday morning" was the first thing that went through my head. Then she said something I will never forget, "Angie, the pathology reports just came back and it was what we feared, you have the Inflammatory Breast Cancer."

How is someone supposed to deal with a call like that, especially someone sitting on her couch by herself at home? Morgan had left for work about an hour before. The doctor went on to describe what would happen and that she wanted to see me on Monday to go over what the plan of action is. The best thing she said is to me is "We ARE going to beat this."

After I hung up the phone the only thing I could do was cry. Was I going to be one of the statistics of women my age that was going to die from breast cancer at 28?!?! How could this be happening to me?? Why was this happening to me??? Out of all the women in the world, I drew the short straw evidently.

I picked up the phone and I don't care who you are, if you have a good relationship with your parents, even if you are married to the best man in the world, the first person you want to call with news like this is your mom. So that is what I did. She picked up the phone and I told her that I had just heard from the doctor with the results of the pathology done on my samples. "Mom, I have breast cancer," was all I could get out before the tears came. I don't know if my mom started crying right away or if it was just me, but I don't remember much of the conversation after that other than her saying her and my dad were coming up to Wisconsin as soon as he got off work and my mom would stay with me all week because of the tests I was going to be having - my dad would have to go home to work two days and then he was taking the rest of the week off to be up here as well.

I then had the second hardest call to make, I had to call my husband. As I was getting ready to call him, he called me. He said I just felt like I should call you to see how you are doing. That's when I delivered the news to him. By this point I'm all cried out, and he has decided that he thinks he should come home right away. I told him that that wasn't necessary because I was going to be fine. I would just see him in 5 hours when he got off work. 30 minutes goes by and here he is walking through the door crying. At that point I decalared a No Cry Zone! I told him and my mom that crying wasn't going to help anything. Me getting pissed, upset, depressed or crying was just going to take the energy I needed to fight this disease. And when the time came (and I know it will) when I need to crash a little, I need to know that someone is going to be there and be strong for me, instead of me being strong for everyone else. He agreed and after an hour or so, he stopped crying as much.

About four hours later, my parents arrived and I informed my mom of the No Cry Zone so anytime she wanted to cry she needed to leave the room I was in because if my mom and I see eachother crying you better go buy some Kleenex, because we don't stop for a while. She cried a little as did Morgan and then we talked about the plan for Monday with my doctor's appointment being at 9:00 a.m. I think it was hard on my dad because we are so close and he had to leave on Sunday so he couldn't be at the doctor's appointment with me. That night, my parents stayed in my apartment, and the bed I was so looking forward to sleeping in...became their bed for the night. Grrr. My bed consisted of being the couch - which I normally get awesome sleep on, just not that night. Morgan was going to sleep on the futon in the back bedroom, but he refused to leave me and instead slept on the floor next to the couch. I even had to get up in the middle of the night to go to the restroom and as I was coming out, he woke up and was standing up to make sure nothing was wrong with me.

I do have to say that I don't know how people go through this without a family like mine. They are there every step of the way and more supportive than I could ever ask them to be. If there is one blessing to come out of this, I would say that it has brought me closer to my mom, and my husband. God's plan is a goofy one!

6 comments:

Anonymous said...

Sounds like Morgan is a good one. I'm glad you have a supportive family!

alicia bark said...

I just checked this email account but I put this blog as a favorite so I can view it everyday!

We've come to figure out, God works in mysterious ways Angie! Stay positive...you've got so many people on your side and we all know you're capable of doing wonders.

Don't forget us South Bend ladies are far more complex than anyone else so we shouldn't ever expect to do things the easy way :)

CBNC through and through. 20+ years together...20+ years of love for you!

Pack it out pack it in.....

Dookie

Anonymous said...

You have a very supportive family and I hate to hear that you all have to go through this. I am keeping you in my thoughts and prayers.

Shari said...

Hey Ang,

I read a post on an IBC info site about a woman who was diagnosed, fought and was cured. Turns out that she and her husband were going to move hours away from her family. Shortly after her recovery, her mother fell ill and passed away. She believed that God brought her IBC because only something that serious would have kept her from moving away from her family. She got to enjoy additional years with her mother that otherwise would have been lost.

I certainly hope that's not the exact same plan in your case, but it confirms that God *does* work in mysterious ways.

You are always so active and involved in so much, and such a well-rounded and put-together person, I wouldn't be surprised if this experience is meant to help you to grow in great new ways that wouldn't have been possible otherwise.

I also think it's wonderful that you are documenting everything. It is cleansing for you, good for your friends and family, and will be an inspiration to future women. Please keep it up - I'm sure more people will appreciate it than you realize. :)

PS- I told Charlie he's got some steep competition in the wonderful man dept!!

Mare said...

Hi .. I'm so very sorry to hear about your IBC diagnosis BUT fortunately with all the medical advancements there is every reason you will be a loooooooong time survivor! On a personal note my daughter Karen was diagnosed with IBC at age 36 in 1997 and she continues to do remarkably well as I know you will be doing too! The emotional roller coaster of shock, fear and denial is a rough one but it's amazing how strong we all become while going through this journey. Once you begin treatment you know you are one step further to being NED (no evidence of disease) Please know there is an IBC support list with a myriad of young women just like yourself who can relate to everything and anything you are and will be going through. If you want any informatio at all please don't hesitate to write to me AND if your mom would like to talk to a mom of an 11 year ibc survivor, I would be happy to talk to her. You are truly blessed to have so much love and support. The IBC family is a loving and caring one!

Marilyn 'Mare' Kirschenbaum
Vice President
Inflammatory Breast Cancer Foundation
www.ERASEIBC.com
www.ibcsupport.com
Toll free #1-866-944-4223
mare@eraseibc.com

Anonymous said...

Hello - my name is Kristen and I am a friend of your mother. I work with her at RACO in South Bend and she told me about this site because myself and others are constantly asking about you and after reading it...I have to say.....

YOU ARE ONE OF THE STRONGEST YOUNG WOMEN I KNOW!!!!!!

I think your going to be just fine with the attitude you have. I have Multiple Sclerosis (which is nothing compared to what your dealing with) and my doctor has told me that half the battle of any fatal disease is your attitude towards it.

Keep up the positive attitude and fight this....You can do it!!!!

Lots of prayers go out to you from South Bend friends!!!